I am really sad. But at first, when Stellan’s esophageal study was done, and I got the news about Stellan’s adverse reaction to the sedation drugs and his need for general anesthesia, I was fine. Even seeing Stellan all splotchy from the reaction, still sedated, sleeping here in the recovery room didn’t do me in. [...]

Stellan literally just got wheeled back, a brand spanking new iv in his left hand, to the Cath Lab here on the 6th floor of Boston Children’s Hospital to get put to sleep for his esophageal study. Because, like a skilled Red Sox pitcher, Stellan has thrown so many curve balls in the past month [...]

Seriously? My baby is amazing. I mean, tell me that you would be this happy if you had in iv. In. Your. Head. That’s what I thought. In all seriousness, Stellan had a great day. He ended up not needing a diuretic, instead choosing to excrete the superfluous fluid in his body all by himself [...]

I won’t lie. As both an aspiring photographer and an avid sunbather… …I am totally digging… …all the natural light that streams in through the windows in Stellan’s corner room here in the CICU.

If you’ve been reading my blog for long, you’ve heard it. Either here or perhaps on someone else’s blog: Pray for Stellan! This journey with our baby of late, and all this talk about prayer for him, has really gotten me thinking. Since being in the hospital with Stellan for a month now, I’ve had [...]

In essence, what Dr. A was doing for our son today was making a good play when being dealt an awful hand. Those were actually his words. Not mine. I’d like to give credit where credit is due. And, as you’ll find, Dr. A deserves lots of credit after today. Stellan made it through his [...]

Stellan was at peace when I said goodbye to him this morning and is in surgery now. We had a very long night and he ended up getting sedated so he could rest. Here he is right before he got put on the ventilator for surgery. Amazingly, I am at peace as well. I expect [...]

UPDATED: I just had finished writing this entire post a few hours ago, and then everything changed. So much for the “plan” below. It will still happen, but it may be bumped up as early as tonight and will likely not need to include the initial diagnostics I spoke of. Stellan has made it pretty [...]

FURTHER UPDATED: My friend Amy has offered to collect and post photos in a new post on my blog of anyone wearing orange for Stellan tomorrow. Email your photo to her at orangeforstellan@gmail.com and she will post them starting at 8:30 am Boston time tomorrow (when Stellan’s surgery will start), and ending whenever his surgery [...]